A Dash of Joy Summer Bonus
Ready for some Joy? It’s a summer episode full of it!! Come along for this joyful journey.
Twisted Pink and a Dash of Joy
We are ending season 2 on a positive note with a dash of joy from Dar Finkelstein and a conversation with our Trailblazer of the Month Caroline Johnson, founder of Kentucky-based non-profit organization Twisted Pink whose sole mission is to raise funds for MBC. Even though there is still no cure, our odds of getting to a cure through better funded research and science are improving because of the contributions of allies like Caroline Johnson.
The Magic of Palliative Care: Our Stories
Want to know why we call it “magic?” Hear from people living with MBC about their experiences. While they all agree and encourage others to seek Palliative Care they also are aware of the barriers to access. Our guests cover it all. And it gets real.
Project Life and A Dash of Joy
“It is very important for us who are living with MBC to be able to go to a place where we know it’s safe to just be who we are.” This month’s Trailblazer is Project Life, a virtual wellness house that recently set up residence in cyberspace. The co-hosts Victoria Goldberg and Dar Finkelstein speak with the founder and the CEO of Project Life Leslie Glenn and its COO Jackie Seiner about the origin of the project, MBC wellness and survivorship.
The Magic of Palliative Care -Patients and Their Providers
This month we have focused on quality-of-life issues and this episode is part one of a two part series on the “Magic of Palliative Care”. At times the term “palliative care” is misunderstood and so we also use the newer term ‘supportive care’ to better explain how this care supports your quality of life as you go through MBC treatment. We first turn our focus to the medical providers who help us manage symptoms and treatment side effects and, by doing so, improve multiple aspects of our lives.
The Healing Power of Writing
We’ve talked about many MBC related topics this season but mental health is one we ask about in every interview we conduct. Writing as a self-care tool is one we wanted to explore. April Stearns talked about it as the “legacy of story.” On this episode we explore living with MBC and the healing power of writing.
April Trailblazer & Dash of Joy
Welcome to the Episode 2 of the Trailblazer series. Have you ever asked yourself if Wonder Woman was real? Ask no more. She lives and her name is Jamil Rivers. She is also our Trailblazer of the Month. Jamil was diagnosed with MBC at age 39. She is a mother of three, a caregiver, a full-time CEO of a non-profit organization , the board president of METAvivor and if that’s not enough, she has recently embarked on a new venture—The Chrysalis Initiative, a project dedicated to eliminating disparities in outcomes for Black women with breast cancer. Also in this episode is a Dash of Joy from Our MBC Life’s own Dar Finkelstein. Dar is committed to living a life of joy and she shows us all how to do it. An episode full or hope, inspiration and joy.
Policy and the Power of Patient Advocacy
“I see so much in the metastatic community this idea of just paying it forward, this idea of, yeah, this might not actually help me right now, but I'm still going to bring it up and I'm still going to advocate for it because it will help somebody else.” This is the story about the power of advocacy. Meet some of the individuals and organizations who are advocating for metastatic breast cancer every day wherever the work takes them.
A conversation with Judy Perkins
Judy Perkins joins co-host Victoria Goldberg to share her incredible story. She is a unicorn and a clinical trial success. Judy tells the whole story - the good, the bad, the joyful, the difficult, the grief, the friendship. And when asked is MBC chronic - well we don’t bleep out her reaction.
Trailblazer and Dash of Joy
Our first season 2 trailblazer focuses on the patient - providing them with free services that enable them to focus on healing and time with their families. Through their Thriver Fund, 305 Pink Pack also provides dedicated to support to those living with metastatic breast cancer. Meet Rosemary Carrera of 305 Pink Pack and come south with us to Miami. Also in this episode is a Dash of Joy from Our MBC Life’s own Dar Finkelstein. Dar is committed to living a life of joy and she shows us all how to do it. An episode full or hope, inspiration and joy.
Clinical Trials: The Patient Perspective Part 1
What’s it like to try and find a trial as a patient? What are the challenges and hurdles that have to be overcome? How do we get to a better place? In this episode we hear the perspective of patients and then go to the experts to get some answers. Part 1 of a 2 part series on Clinical Trials.
A Dash of Joy
Meet Dar Finkelstein, the new team member of this podcast and the future host of a monthly segment “A Dash of Joy.” It will air along with our Trailblazer series on the last Friday of each month. All of us need a dash of joy in our lives. Dar is a professional clown and runs not just one, but two Facebook groups devoted to this very subject: She knows of what she speaks.
Meet our Season 1 Trailblazers
Meet our season 1 Trailblazers. These amazing women are making a difference in their communities. Finding inspiration from their own cancer experiences they have created organizations to support others, close gaps, and give back.
GRASP: Guiding Researchers and Advocates to Scientific Partnerships
Co-host Natalia Green finds out how Christine Hodgdon and Julia Maués, co-founders of GRASP (Guiding Researchers and Advocates to Scientific Partnerships) saw an opportunity last year to bridge the gap between researchers and MBC advocates in the pursuit of better research connections.
