GRASP: Guiding Researchers and Advocates to Scientific Partnerships
Co-host Natalia Green finds out how Christine Hodgdon and Julia Maués, co-founders of GRASP (Guiding Researchers and Advocates to Scientific Partnerships) saw an opportunity last year to bridge the gap between researchers and MBC advocates in the pursuit of better research connections. Christine Hodgdon was diagnosed with metastatic breast cancer in 2015 and has a background in biology and nonprofit programming. In addition to her work with GRASP, Christine is the founder of the Storm Riders Network, a website that shares the latest breast cancer research, treatments, and clinical trials. Julia Maués was diagnosed with breast cancer in 2013 while pregnant. Following the birth of a healthy baby boy, Julia did tests she couldn’t do while pregnant and discovered cancer had spread to her brain, liver, and bones. Julia has found meaning and purpose in working with patients and researchers to make cancer research more patient-centered, innovative, and inclusive. Find out how to tap into the GRASP registry of advocates and researchers.
You will want to listen to these two inspirational advocates who are as smart as they are passionate and kind.
SOCIAL/HASHTAGS
GRASP Twitter
#GRASPcancer
#oncoalert
Julia Maues Twitter Instagram
Christine Hodgdon Twitter Instagram
MENTIONED IN THIS EPISODE
2020 San Antonio Breast Cancer Symposium
ASCO
LBBC Hear My Voice
LBBC Young Advocate Program
Count Me In MBC Project
MBC Alliance - The Marina Kaplan Project BC Brain Metastasis Initiative
MORE ON GRASP
Patient Advocates at San Antonio
GRASP Connects Advocates and Experts at 2020 ASCO Annual Meeting
Breast Cancer.org Podcast - GRASP: Empowering Patients with Knowledge
HELPING OTHERS IN YOUR COMMUNITY
MBCN - Advocacy-Use Your Voice
Making a Difference - Volunteer ideas
Facing Forward - Making a Difference in Cancer
Check out our Trailblazer series as part of “Just Gotta SHARE” to meet people making a difference in their local communities.
POLICY ADVOCACY and ADVOCACY EDUCATION
NBCC Stop the Clock Campaign
Project Lead
Metavivor Stage IV Stampede
MBC Alliance
Komen Advocacy
Young Survival Coalition Advocate
TALKMETS HELPLINE
SHARE Cancer Support
Monday-Saturday 930a-9p EST
1-844-ASK SHARE, 1-844-275-7427 Option 6
https://www.sharecancersupport.org/metastatic-breast-cancer/helpline/
