Psilocybin-assisted Therapy: One Patient vs. the DEA
Welcome to the third and final episode in our series on the potential of psilocybin-assisted therapy to relieve the existential distress of, and help us live as well as possible with, metastatic breast cancer.
In this episode, we speak with two women taking action to increase legal access to psilocybin-assisted therapy in the United States. The first is a patient living with MBC who, along with her doctor, have brought a lawsuit against the Drug Enforcement Agency which is denying her access to psilocybin in the palliative care setting and under existing Right to Try laws for promising investigational medications for the terminally ill. The patient petitioner, Erinn Baldeschwiler, tells us why she joined the lawsuit, what she hopes to gain from psilocybin-assisted therapy, and what it’s been like to deal with all the legal proceedings on top of a progressing MBC diagnosis.
Our second interview in this episode is with the attorney who is leading the legal case to open access to psilocybin under Right to Try legislation, Kathryn Tucker of the Emerge Law Group. Kathryn explains why psilocybin should be immediately available to patients suffering from distress, anxiety, depression under FDA rules and state and federal Right to Try laws. But the DEA is continuing to block access and hold psilocybin on Schedule 1 of the Controlled Substance Act.
It’s confusing, but we explain it all here. Lastly, see the Episode Notes for a current petition to the DEA to step out of the way and grant access to psilocybin for anyone with a terminal illness.
This series has been led by series producer, Dr. Paula Jayne with assistance from co-host Lynda Weatherby, and senior producer and host Lisa Laudico.
Thanks for listening!
Psilocybin-assisted Therapy: Patient Experiences
Welcome to the second episode in our series on the potential of psilocybin-assisted therapy to help us live as well as possible with metastatic breast cancer.
In this episode, we talk to two women with breast cancer who had legal access to psilocybin-assisted therapy. Journalist and writer Erica Rex participated in a clinical trial at Johns Hopkins after being diagnosed with early-stage breast cancer. Mari Singfield, a young Canadian woman living with MBC, gained access through an exemption to Section 56(1) of the Canadian Controlled Drugs and Substances Act, a process facilitated by the organization, TheraPsil.
Both women shared with us the process that they went through to gain legal access to psilocybin-assisted therapy, what the treatment was actually like for them, and what, if anything, changed in their lives afterward.
Black History & Health Equity Every Month, Every Day
We believe that Black History Month should always be celebrated but let's agree that it should not be just for one month but every month and every day.
Trailblazers of Charlotte
We begin the Season 3 Trailblazers with a twist. We’re taking Trailblazer on the Road! Our first stop will be the wonderfully, philanthropic city of Charlotte, NC. Join us as we speak with representatives of two truly grassroots organizations, dedicated to supporting the Charlotte breast cancer community in two very different ways. Interestingly enough, both organizations were started by women living with Metastatic Breast Cancer.
MBC & the LGBTQ2S+ Community
join us for our discussion about the LGBTQ2S+ community and MBC. Co-host Natalia Green moderates a panel with Bob DeVito and Rainy Orteca, two guests living with MBC, and who are part of the LGBTQ2S+ community along with the co-founder of Queering Cancer, Dr. Evan Taylor. We also sit down with Kimiko Tobimatsu , a Canadian human rights lawyer and an award-winning graphic novelist whose book, Kimiko Does Cancer, tells the story of her breast cancer diagnosis at the age of 25 and the challenges she faced as a queer person, living with breast cancer.
Introducing the BECOME Project & Survey
The MBC Alliance asks the question “How can we ensure Black people are better represented in cancer research? Finding the answer starts with patient voices.” The BECOME Project is positioned to do just that. BECOME project lead Stephanie Walker and committee member Sheila Fuhs join Lisa Laudico to talk about the important initiative and how YOU can get involved.
Advocacy from a Legislator’s Perspective - Rep. Debbie Wasserman Shultz
Rep. Debbie Wasserman Schultz shares with us the power of the patient advocate voice and the impact of personal stories. She talks about how her own experience with breast cancer has shaped her approach to issues related to healthcare. We are so thrilled to get a legislator’s perspective as we explore Our MBC Life.
April Trailblazer & Dash of Joy
Welcome to the Episode 2 of the Trailblazer series. Have you ever asked yourself if Wonder Woman was real? Ask no more. She lives and her name is Jamil Rivers. She is also our Trailblazer of the Month. Jamil was diagnosed with MBC at age 39. She is a mother of three, a caregiver, a full-time CEO of a non-profit organization , the board president of METAvivor and if that’s not enough, she has recently embarked on a new venture—The Chrysalis Initiative, a project dedicated to eliminating disparities in outcomes for Black women with breast cancer. Also in this episode is a Dash of Joy from Our MBC Life’s own Dar Finkelstein. Dar is committed to living a life of joy and she shows us all how to do it. An episode full or hope, inspiration and joy.
Policy and the Power of Patient Advocacy
“I see so much in the metastatic community this idea of just paying it forward, this idea of, yeah, this might not actually help me right now, but I'm still going to bring it up and I'm still going to advocate for it because it will help somebody else.” This is the story about the power of advocacy. Meet some of the individuals and organizations who are advocating for metastatic breast cancer every day wherever the work takes them.
Meet our Season 1 Trailblazers
Meet our season 1 Trailblazers. These amazing women are making a difference in their communities. Finding inspiration from their own cancer experiences they have created organizations to support others, close gaps, and give back.
Best of 3BlackDocs
We are excited to share another Best of from Season One. 3 Black Docs know how to keep it real and laugh and have fun. Dr. Karen Winkfield, Dr. Zanetta Lamar, and Dr. Tiffany Avery bring their professional take on racial disparities in healthcare and addressing structural barriers that lead to disparities in treatments and outcomes.
#InclusionPledge One Year Later
Join us for a conversation on biases and disparities, privilege and stigmas, allyship and inclusion. Maimah Karmo, Julia Maues, and Christine Hodgdon join Sheila McGlown and Lisa Laudico for an authentic and real conversation on these issues and more.
Male Breast Cancer & Remembering Ryan Keith
Kate Keith and Michael Singer share their experiences with male breast cancer. Kate shares personal stories about her husband Ryan who died earlier this year from metastatic breast cancer.
Ricki Fairley and TOUCH, The Black Cancer Alliance
Ricki Fairley, founder of TOUCH, the Black Breast Cancer Alliance, shares her incredible story of how she upended and changed her life and ended her successful marketing career when she was diagnosed Stage 3A Triple Negative Breast Cancer . Ricki talks about the founding of her organization and her overall goal to address Black Breast Cancer as a unique and special disease state, with the overall goal of reducing the mortality rate for Black women.
Metavivor and #LightupMBC
Jamil Rivers, the new President of Metavivor, joins the pod to talk about research, health disparities, self-care, and what she sees ahead for the organization. And Laura Inahara shares the story of her best friend Jess Moore and the #LightUpMBC campaign that honors her.