Introducing the BECOME Project & Survey
Join Host Lisa Laudico as she speaks with the Metastatic Breast Cancer Alliance's BECOME Project Lead, Stephanie Walker, and BECOME committee member Sheila Fuhs. The BECOME Project stands for Black Experience of Clinical Trials and Opportunities for Meaningful Engagement and was initiated by the work of the late epidemiologist and MBC advocate, Marina Kaplan. For individuals living with MBC, the data is troubling. In the U.S., the mortality rate for non-Hispanic black women with breast cancer is 40% higher than that for non-Hispanic white women. As we noted in our two-part clinical trial episodes, clinical trials are essential for all of us living with MBC to improve outcomes in general and for our own survival. In spite of this black individuals makeup only three to 6% of patients in all cancer clinical trials. Clearly, this has to change.
The goal is to have 500 individuals complete the survey, available here and on the BECOME landing page on the Metastatic Breast Cancer Alliance (MBCA) website. Take the survey, share it within your community. The data gatherers will be analyzed and used to develop projects and initiatives aimed at increasing diversity among participants in clinical research.
MENTIONED IN THIS EPISODE
Learn more about BECOME
Take the survey online or request a paper copy of the survey be mailed to you by calling (646) 497-2695 or sending an email with your name and address to become@mbcalliance.org.
You can also Download & print the survey. Only surveys received by June 15, 2021 will be included in the analysis. Mail to: BECOME, 4080 Broadway #311, New York, NY 10032.
Meet the Guests of this Episode
No one should face MBC alone.
Whether you have a diagnosis yourself, or you're a friend, family member or caregiver of someone with a diagnosis, we're here to lend support, give information, share experiences, and to lift you up every time you need it. Research has proven that having the support we need during our most challenging times is paramount to honing coping skills and striving for wellness. Our supportive network is made of people just like you, who DO know what it's like, who HAVE been there, who CAN help.
TALKMETS HELPLINE
SHARE Cancer Support
Monday-Saturday 930a-9p EST
1-844-ASK SHARE, 1-844-275-7427 Option 6
https://www.sharecancersupport.org/metastatic-breast-cancer/helpline/
