Leptomeningeal Disease Diagnosis - Words of Encouragement
Written by Victoria Goldberg
WHAT do you say to a friend who just received this diagnosis of leptomeningeal disease (LMD)? You may want to say that as survival rates from other cancers improve, more people are having to cope with this complication, but fortunately, recent advances in cancer therapies promise more options for effective treatment. Make sure that your friend understands that much of what they may hear and read is already outdated.
Coronavirus (COVID-19) Update from 3 Black Docs
Dr. Karen Winkfield, Dr. Zanetta Lamar, and Dr. Tiffany Avery (3 Black Docs from the podcast with the same name) were among the first guests on our podcast. In this blog read Dr Avery’s response to our questions about the change in healthcare disparities and the issues still facing the underserved communities with the backdrop of the raging pandemic.
Transcribed by Victoria Goldberg
Finding Joy While Living with MBC
This week’s blog comes from our listener and SHARE’s MBC Helpline Volunteer, Dar Finkelstein. Dar discusses her search for Joy in the middle of a life filled with doctors, shots, pills and scans and offers some simple practices she has put in place to keep her focus on the feeling of Joy. Dar is a professional clown and runs not just one, but two Facebook groups devoted to this very subject: Making Our Best MBC Life and Choose to Live With Joy. She knows of what she speaks.
Written by Dar Finkelstein
Skipping Down Fifth Avenue
Our first guest blogger is SHARE’s MBC volunteer and a dear friend, Alison Greenberg. According to Cancer.Net, 6% of those living with MBC, were initially diagnosed at Stage IV. In August of 2013 Alison became one of them. In this funny and poignant post she talks about the shock of receiving a Stage IV diagnosis and comes up with a clever and original way to describe her fears.
Written by Alison Greenberg
Vacation in the time of pandemic
This week’s blog is my reflection on how important vacation and the time away are and how current events have an impact on us without our knowledge
Written by Victoria Goldberg
Disen-what?
This week’s blog addresses the question: “Do people living with MBC cope with grief and loss differently than others?”
Written by Victoria Goldberg
This is how we started
In our first blog we talk about how Our MBC Life came to be, our relationship with SHARE, who is on the team, and most importantly why we are doing this. “The sole purpose Our MBC Life is to serve this community.”
Written by Victoria Goldberg