Living with De Novo metastatic breast cancer since July 2015, Stephanie is a retired RN with close to 40 years experience in pediatric and adult critical care, as well as emergency department experience in critical access size hospitals to Level 1 trauma centers. Her last 14 years in nursing was spent in hospice/end of life care.
After being diagnosed with MBC in 2018, Stephanie began to volunteer with many different breast cancer organizations. She is an independent advocate with the Metastatic Breast Cancer Alliance and the project lead of the BECOME (Black Experience of Clinical Trials and Opportunities for Meaningful Engagement) initiative. She was also instrumental in the planning and participation in the Black Wo(men) Speak Symposium held in conjunction with SABCS 2022.
She is also a Living Beyond Breast Cancer Hear My Voice graduate, as well as a helpline volunteer. She is also a Project Lead grad of 2022. She is the Co-Chair of the working group that focuses on removing barriers to standard of care and quality of life.
Stephanie will answer any questions, even the hard ones regarding her own mental health. She isn’t defined by her cancer and wants others to be their own light to shine bright. She is married with adult children & grandchildren, and lives with husband John and rescue dog Rex in eastern North Carolina.
Stephanie Walker
Our annual “We Remember” episode honors all who died from metastatic breast cancer since last October and gives voice to the grief and love that endures after each death. Each name shared is a tiny marker of a full, messy, beloved life and each one leaves behind an expansive network of loved ones. For those of us in the MBC community, the loss of our friends is particularly devastating & the cumulative losses are heavy. You are not alone in your grief. We invite you to bear witness with us to this outpouring of love for those we have lost.
Today we talk with breast cancer researcher Dr. Steffi Oesterreich, clinical coordinator Lori Miller, and MBC advocates Stephanie Walker and Christine Hodgdon to learn more about tissue donation programs and how they can help accelerate scientific research. Tissue donation programs ask patients to consider donating their tissues, including organs, soon after we die to help researchers better understand how breast cancer continues to spread and how to slow it down or stop it altogether. Donating our tissue is one way we can help thousands of other women and men with MBC to live longer with higher quality of life.
When it comes to cancer, living in a rural area puts people at a disadvantage. They face limited access to quality healthcare, long travel times, and low recruitment to clinical trials, all of which affect quality of care and health outcomes. Join our producers Stephanie Walker and Martha Carlson, along with their guests, as we deep dive into this important topic.
After a Stage IV Metastatic Breast Cancer (MBC) diagnosis, patients and the people around them are often left reeling and looking around to figure out how to make some sort of meaning from the trauma. The guests and representatives from LBBC and METAvivor on this episode share how finding purpose in the midst of adversity has helped them to truly LIVE with MBC. Don’t forget to listen all the way to the end as guest producer, Abigail Johnston, has some specific calls to action to share!
This season, we are bringing back our Trailblazer series. Our first trailblazer is Living Beyond Breast Cancer (LBBC), a national non-profit that has become synonymous with the word community. That’s because LBBC’s annual Conference on MBC is one of the largest gatherings for women and men living with MBC. In this episode we will speak with Jean Sachs, CEO of LBBC, and sprinkled throughout this episode are your voices, voices of patients sharing their LBBC experience.
Jumping hurdles to get the treatments you want is the reality for people living with MBC. Add systemic racism into the healthcare mix and it’s clear that more needs to happen, and soon, to create equity and greater diversity in one of the most important tools in the MBC toolbox: clinical trials. In this episode, we check in with Stephanie Walker, who led the BECOME project and spearheads the Black Wo(Men) Speak Symposium, patient advocate and clinical trial participant Rev. Dr. Tawana Davis, and Patient Navigator Valarie Worthy. How does systemic racism affect what Black patients learn about MBC clinical trials? And how can those who need it most break down barriers to the best care?
We believe that Black History Month should always be celebrated but let's agree that it should not be just for one month but every month and every day.
Want to know why we call it “magic?” Hear from people living with MBC about their experiences. While they all agree and encourage others to seek Palliative Care they also are aware of the barriers to access. Our guests cover it all. And it gets real.
The MBC Alliance asks the question “How can we ensure Black people are better represented in cancer research? Finding the answer starts with patient voices.” The BECOME Project is positioned to do just that. BECOME project lead Stephanie Walker and committee member Sheila Fuhs join Lisa Laudico to talk about the important initiative and how YOU can get involved.
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Producer, Host
Have you ever wondered how our cancer metastasizes? Why is it that some treatments just don’t work? Can we as patients living with MBC alter cellular level activity? In this episode, you will hear the answers to these questions and more. Join us as we take a step back to the basics of tumor microenvironment with our guest, Dr. Amy Beumer, who will break down the science into smaller, digestible bites. In this lively discussion, Dr. Amy explains the how and the why of this tough topic. You will hear her say “This is fun” and use engaging, relatable metaphors like “Picture your neighborhood and that one neighbor…..” By the end, I assure you that you’ll walk away with a deeper understanding of tumor microenvironment than when you started.
Pull up a chair, listen in your car, or on your daily walk, we are with you wherever you listen to your podcasts. Terms and other resources are provided in the episode notes.