When it comes to health equity and breaking down systemic barriers to care in the metastatic breast cancer community, Sheila Johnson is an inspiration to us all.
With African American women dying 42% faster than any other race, Sheila has used her own experiences to enhance care for others and tackle this worrying statistic. Sheila is wholly committed to ensuring that not only is health equity awareness raised, but that people from marginalized and minority groups are included in conversations about their care. Sheila’s efforts are staggering and relentless. She has held positions as an ambassador, advocate and mentor with Living Beyond Breast Cancer, Young Women’s Initiative, National Breast Cancer Coalition, Shades of Brown Foundation, and The Metastatic Breast Cancer Project amongst others. Sheila was a Patient Insights Board member for Medidata bringing her voice to recruitment and inclusion of clinical trials to the African American community. She was also a Consumer Reviewer for METAvivor and the DOB Breast Cancer Research Program.
Sheila exemplified inclusion, and despite her own health issues, she has given her time selflessly to engage and include others. She has spearheaded projects that have served to enhance diversity and promote equality, including being part of the Susan G. Komen Advocates In Science Program and as a Komen Scholar. Sheila’s remarkable story has been featured online for A Story Half Told and in publications including The Breast Cancer Wellness Magazine Winter 2018 Edition “Ending Disparity”, and “O”, The Oprah Magazine September 2020 Edition “An Air Force Vet’s Hardest Fight Yet.” Sheila is now a published author of “A Survivor’s Lens”, A Metastatic Breast Cancer Survivor’s Focus on Gods Word and Faith.
Sheila passed away from MBC on April 19, 2024. Her resiliency and energy were contagious, and she delivered excellence in all aspects of her life, personal and professional.
Sheila (McGlown) Johnson
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Travel can mean many things - Adventure. Relaxation. Exotic places & cultures, foods & jaw-dropping natural vistas. It can stimulate or soothe us and transport us literally and figuratively to a different reality. It lifts us out of the daily challenges of our diagnosis. It's no wonder so many of us with MBC love to travel and to plan new trips. But traveling with MBC can present a unique set of challenges. In this episode, Nancy Roylance co-hosts with Dr. Ellen Landsberger. She's the perfect partner, a retired MD, and one of the most traveled people we know. So brew yourself a cup of tea., pull up a comfortable chair ,and settle in. You'll hear from several members of the OUR MBC life team as well as other frequent flyers from the larger MBC community. We reflect on where we've been, where we would like to go and offer our advice for when a journey is really a journey.