Ashley Fernandez was diagnosed with Denovo Metastatic breast Cancer at the age of 31 in April 2018. Ashley is a fierce thriver who has been living with MBC while being a full time mom to her daughter Davyn and wife to her husband Carlos. Carlos is Active Duty Air Force, they are currently stationed in Ohio. Ashley is also a powerful prayer partner and is active in her local church in Dayton. Ashley has done MBC advocacy through 2018 Ohio Metsquerade, Komen Public Policy, Public Speaking, Metavivor where she was one of the faces of their newest campaigns and Komen. She's always looking for opportunities to educate and empower others to advocate for the best possible health care, You are worth all good things in this world! She believes in living life colorfully, full of adventure and with intention. All MBC patients should be able to create memories and meet important milestones in their lives which is only possible with research. She continues to educate and remind others those living with MBC are not statistics or shells, but people. 116 People die a day with MBC , Stage 4 truly needs more funding.
Ashley Johnson-Fernandez
Our annual “We Remember” episode honors all who died from metastatic breast cancer since last October and gives voice to the grief and love that endures after each death. Each name shared is a tiny marker of a full, messy, beloved life and each one leaves behind an expansive network of loved ones. For those of us in the MBC community, the loss of our friends is particularly devastating & the cumulative losses are heavy. You are not alone in your grief. We invite you to bear witness with us to this outpouring of love for those we have lost.
In the third of our special series on living with bone metastases, we are turning to one of the most frequent questions and concerns we hear: Can I exercise??
To get the answers, OMBCL co-hosts Ashley Fernandez & Martha Carlson spoke with Dr. Kathryn Schmitz, who has led the way in understanding and implementing exercise for people with breast cancer, including those of us with metastatic breast cancer. Dr. Schmitz founded the Moving Through Cancer initiative of the American College of Sports Medicine, which has a bold goal of making exercise standard of care in oncology by 2029. She fills us in on the science of exercise – why it’s important and how it can be done with bone metastases. Interspersed into the interview with Dr. Schmitz are the stories of people living with bone metastases, providing hope and inspiration that exercise is possible. Be sure to listen to the full episode to get all the suggestions from Dr. Schmitz and hit “Read More” below to go to our episode notes, which link to free videos and other resources.
Travel can mean many things - Adventure. Relaxation. Exotic places & cultures, foods & jaw-dropping natural vistas. It can stimulate or soothe us and transport us literally and figuratively to a different reality. It lifts us out of the daily challenges of our diagnosis. It's no wonder so many of us with MBC love to travel and to plan new trips. But traveling with MBC can present a unique set of challenges. In this episode, Nancy Roylance co-hosts with Dr. Ellen Landsberger. She's the perfect partner, a retired MD, and one of the most traveled people we know. So brew yourself a cup of tea., pull up a comfortable chair ,and settle in. You'll hear from several members of the OUR MBC life team as well as other frequent flyers from the larger MBC community. We reflect on where we've been, where we would like to go and offer our advice for when a journey is really a journey.
Living with metastatic breast cancer is hard enough, but for those who are single or do not have a primary caregiver, living alone with MBC can be especially challenging. With some extra planning and working out who can support you, however, it is possible to continue to live alone well even when you have MBC. In this episode, we speak with four amazing ladies from the US & Canada, who generously share their experiences, feelings, and plans for living alone while navigating MBC. We then discuss some helpful resources for finding social & emotional support, legal & financial resources, and coordinating care. Finally, we end by sharing Lesley Kailani Glenn’s story of deciding to leave a thirty year marriage while diagnosed with MBC. Join us for this real but hopeful discussion! *Note: individuals in this episode share their thoughts on medical aid in dying as one part of this rich conversation.
Being diagnosed with MBC can feel like you’ve been dropped into a dangerous and alien landscape, one whose inhabitants speak a new and confusing language. Numb and bewildered, you face a mountain of medical decisions—each with seemingly high stakes. The last in Our MBC Life’s 3-part series for people newly diagnosed with MBC, this episode's interview with Dr. Rebecca Shatsky, interspersed with experienced-patient voices, sheds light on cancer types, tests, and treatment—and empowers listeners to navigate this challenging new terrain with understanding, knowledge, and confidence.
In this episode, Our MBC Life sits down with patient and advocate Michelle Anderson-Benjamin, founder of The Fearless Warrior Project. During the pandemic, Michelle was diagnosed with early-stage breast cancer and then with metastatic breast cancer shortly after she completed initial treatment. An experienced healthcare professional, a mom of two kids, and a wife who poured all her energy into others, Michelle says the diagnosis of MBC put a "battery in her back" to refocus attention on herself. This candid conversation has a lot to offer those newly diagnosed with MBC, and will inspire all of us.
Hearing the words “you have metastatic breast cancer” is devastating. Whether your diagnosis comes de novo or months, years, or even decades after treatment for early-stage breast cancer, there is no way to prepare for the terror, anger, despair, and sense of freefall that follows. You’ll hear from oncology social worker Lisa Nelson and a candid group of patients on the challenges of processing the diagnosis.
Celebrate OMBCL’s 100th episode and National Family Caregiver Month by listening to our candid conversations with three committed and courageous caregivers.
All of us approach life and death in general from the perspective of our faith traditions, our family cultures, and the traditions and culture we choose as adults.
How does one do things right at the end of life? There are many ways to answer this question, as varied as all of us.
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Many people are unfamiliar with Postpartum Breast Cancer (PPBC), a little-known subset of breast cancer that occurs in women within 10 years of childbirth. This episode of our podcast delves into this personal topic for several members of our team.
Drs. Virginia Borges and Pepper Schedin are launching the first-ever clinical trial to prevent PPBC. Their groundbreaking approach involves giving healthy new mothers a brief course of ibuprofen as they wean their babies from breastfeeding. This trial holds huge potential for global impact, and the doctors need the public’s help to make it happen.