Re-release ~ Our Inaugural Podcast
Join us as we revisit our inaugural episode with Maimah Karmo of the Tigerlily Foundation. The #inclusionpledge initiative was started when our Trailblazer series co-host and the founder of Angel In Disguise, Inc, Jersi Baker, raised her voice at a conference asking why no one looked like her on stage even when the discussion was on racial disparities in healthcare for people living with MBC. From there, the TigerLilly Foundation’s Maimah Karmo in partnership with the founders of GRASP, Christine Hodgdon and Julia Maues and many others, developed the #inclusionpledge to get organizations and individuals to commit to taking real action to change these disparities. We will catch up with Maimah, Christine and Julia later this month but we wanted to re-release our inaugural podcast with Maimah since it is so very relevant still.
SOCIAL/HASHTAGS
@Maimah.com
@tigerlilycares
#InclusionPledge
#listenupMBC
INCLUSION PLEDGE
Take the #InclusionPledge at Change.org
Visit the Tigerlily pledge page to read more and pledge
MENTIONED IN THIS EPISODE
https://www.tigerlilyfoundation.org/
https://angelindisguiseinc.org/
Metastatic Breast Cancer Project Count Me In
GRASP at SABC (San Antonio Breast Cancer Symposium)
https://thestormriders.org/grasp/
https://www.sabcs.org/
Beth Caldwell’s blog
ADDITIONAL INFO ON DISPARITIES IN HEALTHCARE
The Inclusion Pledge: Advocating for the Inclusion of Black Women in Breast Health
https://www.facebook.com/BlackDoctor.org/videos/301052511031101
Yale Cancer Center Tumor Study Shows Triple-Negative Breast Cancer has Different Biology in African Americans https://medicine.yale.edu/news-article/25575/
Breast Cancer and Race: Disparities and Mental Health Effects
https://www.breastcancer.org/community/podcasts/race-care-disparities-20200608?flip
Many Medical Decision Tools Disadvantage Black Patients
https://www.nytimes.com/2020/06/17/health/many-medical-decision-tools-disadvantage-black-patients.html?referringSource=articleShare
Treatment barriers create racial disparities in cancer care. They need to come down
https://www.statnews.com/2020/06/24/cancer-care-racial-disparities-dismantle-barriers/?fbclid=IwAR36rKDgdJAdSSp1AsycwHU60QSk4z9Nerowv2I2L_nSu9CZZgePYe4Y2S0
ADVOCATING FOR YOURSELF
http://mbcn.org/for-the-newly-diagnosed/
https://www.everydayhealth.com/breast-cancer/metastatic-breast-cancer-questions-for-your-doctor.aspx
https://www.nccn.org/patients/guidelines/content/PDF/nccnquickguide-breast_metastatic-patient.pdf
https://www.nccn.org/patients/guidelines/content/PDF/stage_iv_breast-patient.pdf
TALKMETS HELPLINE
SHARE Cancer Support
Monday-Saturday 930a-9p EST
1-844-ASK SHARE, 1-844-275-7427 Option 6
https://www.sharecancersupport.org/metastatic-breast-cancer/helpline/