Join us for Part 2 of this two-part series on Clinical Trials from the Patient Perspective.   This time we hear from the experts who have solutions to the issues raised in Part 1.  We continue to explore how research processes were impacted by Covid 19 and the race to find vaccines and treatments.  Spoiler Alert – there are some Covid silver linings for those of us looking for change in MBC research.  Co-hosts Jim Kremens, Lisa Laudico, and Sarah Mann, speak with experts Susan Colen of BreastCancerTrials.org, Deb Collyer of PAIR, Dr. Neal Fischbach of Yale New Haven Health, bioethicist Jill Manning of Mass General Brigham, Dr. Corrie Painter of Count Me In and the Broad Institute, Kristin Schneeman of Faster Cures and the Milken Institute along with MBC Patient Advocates, Christine Hodgdon of GRASP & Stormriders.org and Lianne Kraemer.

Want more about things Mentioned in this Episode?

Find Clinical Trials for MBC at Metastatic Trial Search and check out Metastatic Trial Talk for related information and resources. Both of these are part of BreastCancerTrials.org and follow them on Twitter @bctrials.
I-SPY Trials master protocols in breast cancer.
Read more on the FDA and the Reagan Udall Foundation announcement on the evidence accelerator.
The National Center for Advancing Translational Sciences (NCATS) — one of 27 Institutes and Centers at the National Institutes of Health (NIH) — was established to transform the translational process so that new treatments and cures for disease can be delivered to patients faster.
Faster Cures at Milken Institute. Follow Milken on Twitter
Learn more about the Metastatic Breast Cancer Project at Count Me In and find out how to register.
You can also find clinical trial information at Christine Hodgdon’s Stormriders website. Christine has a two-fold mission - 1) to provide the most up-to-date scientifically accurate information about breast cancer and its treatments, and 2) to distill this information into a digestible format that is easy to understand.
Join the Facebook Group MBC Trials and Innovation
What is the FDA’s Patient-Focused Drug Development? Find out here. And read more about Compassionate Use and Expanded Access from the FDA. The American Cancer Society has a good article on Compassionate Use.
Read new guidelines for clinical trial eligibility for brain metastasis. ASCO details several FDA changes here.
MBC Alliance #HereAllYear focuses on Clinical Trials 101 in March. Read and hear more patient stories. The MBCA is the home of The Breast Cancer Brain Metastasis Initiative (The Marina Kaplan Project)
MBC Connect - MBC Connect 2.0 is an interactive, web and mobile-friendly patient registry where you can share information about your MBC disease history, experiences, and quality of life – and now, get potential matches to clinical trials. Also available MBC Connect Español

Here is a list of organizations and individuals to follow on Twitter. Thanks to Christine Hodgdon and Julia Maues, founders of GRASP, for compiling and sharing this with all of us.

No one should face MBC alone.
Whether you have a diagnosis yourself, or you're a friend, family member or caregiver of someone with a diagnosis, we're here to lend support, give information, share experiences, and to lift you up every time you need it. Research has proven that having the support we need during our most challenging times is paramount to honing coping skills and striving for wellness. Our supportive network is made of people just like you, who DO know what it's like, who HAVE been there, who CAN help.

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