Clinical Trials: The Patient Perspective Part 1
Join us for Part 1 of this two-part series on Clinical Trials from the Patient Perspective. We review some of the basics about clinical trials for people living with MBC and share personal stories from our co-hosts Lisa Laudico and Sheila McGlown. The team was joined by podcast members, Jim Kremens and Sarah Mann, as we spoke with patient advocates Lianne Kraemer and Christine Hodgdon. The team then had a series of conversations with Lisa’s oncology team, Dr. Neal Fischbach of Yale New Haven Health, Dr. Corrie Painter of Count Me In and the Broad Institute, bioethicist Jill Manning of Mass General Brigham and Kirstin Schneeman of Faster Cures and the Milken Institute. We spend time discussing the current challenges with clinical trials with each of these experts and set the stage for Part 2 of this series when we will discuss solutions to make clinical trials better for people living with MBC.
Part 2 of Clinical Trials from the Patient Perspective will be in your podcast feed on March 29, 2021.
Want more about things Mentioned in this Episode?
MBC Alliance #HereAllYear focuses on Clinical Trials 101 in March. Read and hear more patient stories.
Learn more about Clinical Trials at Metastatic Trial Talk - Search for MBC Trials and follow them on Twitter @bctrials. You can also find clinical trial information at Christine Hodgdon’s Stormriders website.
Learn more about the Metastatic Breast Cancer Project at Count Me In and find out how to register.
MBC Connect - MBC Connect 2.0 is an interactive, web and mobile-friendly patient registry where you can share information about your MBC disease history, experiences, and quality of life – and now, get potential matches to clinical trials. Also available MBC Connect Español
Read new guidelines for clinical trial eligibility for brain metastasis. ASCO details several FDA changes here.
How is the pandemic reshaping healthcare - our guest Kristin Schneeman comments in The Post-Pandemic Life Sciences Landscape: How a crisis enabled innovation, collaboration and a new way forward from SmartBrief
No one should face MBC alone.
Whether you have a diagnosis yourself, or you're a friend, family member or caregiver of someone with a diagnosis, we're here to lend support, give information, share experiences, and to lift you up every time you need it. Research has proven that having the support we need during our most challenging times is paramount to honing coping skills and striving for wellness. Our supportive network is made of people just like you, who DO know what it's like, who HAVE been there, who CAN help.
TALKMETS HELPLINE
SHARE Cancer Support
Monday-Saturday 930a-9p EST
1-844-ASK SHARE, 1-844-275-7427 Option 6
https://www.sharecancersupport.org/metastatic-breast-cancer/helpline/